How Does Endometriosis Affect Women’s Mental Health and Wellbeing?
A study of over 2000 women with a diagnosis of endometriosis conducted by the Monash University Behavioural Science Laboratory found that women with endometriosis had moderate levels of depression, anxiety and stress. The study also reported that women with endometriosis symptoms had poor self-reported wellbeing, worse than the general population average and other chronic conditions such as HIV. Interestingly, the study found that women aged 25 and under had the poorest mental health and self-reported wellbeing.
“It kills your spirit. You do not view the world the same way, you are jilted and see yourself as a helpless soul, trapped in a diseased useless body”
Poor mental health and self-reported wellbeing appeared to be due in part to endometriosis symptoms. Key predictors of poor mental health and self-reported wellbeing in women with endometriosis were:
Pain after sex
Pain before and during menstruation
Pain in the upper legs/thighs
Pelvic floor muscle spasms
Bleeding from the bowel
“When I have pain, it affects everything. When I don’t have pain I am the happiest, most grateful person alive”
What can be done?
Findings from this study evidence that endometriosis can have an adverse impact on women’s mental health and wellbeing, highlighting the need for a multidisciplinary approach in endometriosis treatment involving psychological support for women to reduce the negative effects of endometriosis and its symptoms.
Women with endometriosis suggested the following services:
More support services for women with endometriosis and their partners/ families
More education (e.g. information sessions, leaflets)
Access to medical services post diagnosis (e.g. family planning consultations, pain management)
78% of women believed that counselling would be useful after a diagnosis and 68% said they need more social and psychological support
Biography: Georgia Rush is a final year PhD candidate at Monash University in Melbourne. Her research focuses on the psychosocial effects of Endometriosis and Polycystic Ovarian Syndrome.